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Dáil Éireann debate -
Thursday, 3 Apr 2003

Vol. 564 No. 3

Services for People with Disabilities.

Let us consider the following figures in respect of intellectual disability: 1,711 people are currently living at home in need of full-time residential service; 861 need a day service; 1,014 need a respite service; and 462 have no service whatsoever. There are nearly 500 people with intellectual disabilities who have been inappropriately placed in psychiatric institutions. This is the European Year of Disabled People, but the Government, in a budget that accounted for more than €31 billion of income and more than €26 billion of current spending, has not allocated €1 to increase the places and expand the services of people with disabilities. This is a scandal and it is totally unacceptable.

During the past six weeks or so, I have met parents of people with intellectual disabilities from different locations in the Fingal area regarding the future of services for the region, which has a population of nearly 500,000. Most of these parents or guardians, who are middle-aged or elderly, are deeply concerned at the prospect of a very bleak future for their children. Furthermore, many of them live in rural areas where there is no access to public transport.

Prosper Fingal has been a huge success since it was established in 1978 and has developed a wide range of service options, both centre and community-based. Vocational training is an important element of the services provided and there are currently 38 adults, ten of whom will finish in September, availing of it. What will be available to them after vocational training? No funding from any source has been provided in the 2003 budget to provide a service for them. Having developed skills and knowledge over three to five years, they will have to return to the home environment for 24 hours per day where, more often than not, they will lose many of the social skills acquired, leading to immense domestic upheaval. This goes against the entire concept of training.

Of the ten vacancies which will arise in vocational training, there will be at least 20 to 30 referrals from mainstream schools, St. Michael's House, family and carers and other sources. Due to the funding shortage, many of them will not get a place and waiting lists will become the norm.

Transport is also an essential part of the service because of disability levels, wheelchair use, location, the lack of public transport and health issues. The previous transport arrangements have not been renewed by the health board and, accordingly, Prosper Fingal now has responsibility for providing it. Parents have informed me that the allocation from the health board is insufficient to provide an adequate service and some service users have been unable to attend the centre in recent weeks For others, the cutback in transport will result in their having to spend up to eight hours per day in a minibus given the requirement to pick up adults.

We know that service providers throughout the country are being forced to tell parents of people with intellectual disabilities of school-leaving age that no service can be guaranteed for them this year. The Government's policy is moving away from a recognition of the philosophy that people with disabilities should not have to rely on charity or, in many cases, have to draw on their own limited resources.

Prosper Fingal has drawn up a five year plan to provide 45 additional day places, one five bedroom respite facility, two residential houses and an additional centre and clinic support facility. On behalf of the people with disabilities and their parents and guardians in Fingal, I demand that the Minister and the health board acknowledge their duties and responsibilities and work with Prosper Fingal to ensure that the basic facilities outlined in its programme can be implemented on a planned basis. Under the 1953 Act, the Minister can make a decision in this regard.

I do not wish to receive a response outlining what has been spent to date by the Government. I live in the real world and people with intellectual disabilities are demanding that their rights be acknowledged and that services be provided. Nothing else is acceptable. The ball is in the Minister's court and he has the responsibility and power to ensure that the basic necessities can be provided.

I thank the Deputy for raising this matter and affording me the opportunity to outline my position on it. He asked about savage cutbacks in funding and I am prepared to answer him.

I am familiar with the Prosper Fingal service. I am not sure how many Ministers of State or chairpersons of health boards have visited the facility, but I have done so and I have considerable admiration for the work it is doing. It is a voluntary service provider offering day services, rehabilitation and vocational training places and non-residential based respite services to persons with an intellectual disability in north County Dublin. The Northern Area Health Board works in partnership with Prosper Fingal with regard to the planning and delivery of services. I congratulate all concerned with the delivery of these services.

In 2002, Prosper Fingal received a revenue grant in the region of €1.762 million and a capital grant of €1.5 million towards the expansion and refurbishment of its day service and headquarters accommodation in Skerries. I understand that in January this year the contractor engaged by the Northern Area Health Board for the provision of transport services requested an increase in the budget of 30% for the ongoing provision of that service at the existing levels.

Deputy Seán Ryan's information was incorrect. He first said that there was no money, then that there were no transport arrangements and finally that service users were unable to attend. A total of 32 clients attending day services at Prosper Fingal were receiving their transport from the contractor. The board was not in a position – and rightly so – to meet a 30% increase and the contractor was unwilling to negotiate a lower one. Following discussions between the board and Prosper Fingal, it was agreed that an additional €150,000 be made available in its 2003 budget to provide a transport service from 1 April to 31 December for the client group in question.

They paid €450,000 last year.

The full-year effect for 2004 is €200,000 and the Northern Area Health board has agreed to provide further capital of €15,000 towards the purchase of a bus. I understand that the health board has put in place interim travel arrangements for the client group. If the Deputy is sending the blacks of this debate to anybody, I hope he will send out with the correct information along with the incorrect information he has provided.

The Northern Area Health Board is in discussion with Prosper Fingal with respect to the annual allocation for 2003, but this has not yet been finalised. Given the current financial circumstances, it will be necessary to maintain grants to voluntary agencies at 2002 levels. The Deputy's statement about savage cutbacks is totally without foundation.

It is not.

The Deputy spoke about the matter and I want to do so now. Between 1997 and 2002, an extra €188 million in revenue and €139 million in capital funding has been provided nationwide, making a total additional investment of €327 million for the maintenance and development of services to persons with intellectual disabilities and autism. This year, further additional funding of €13.3 million has been allocated to services for these people to meet the full-year cost of the 2002 developments and to further enhance the health related support services to children with an intellectual disability or autism.

The Minister of State should tell that to the people in the Mansion House on Tuesday night.

This funding brings the total extra investment in these services to €340 million over seven years. Of this total amount, over €200 million has been built into the ongoing budget base.

Only yesterday I heard a presentation from a senior official from a service provider who paid tribute to the good work, the commitment and funding allocated by the Fianna Fáil – Progressive Democrats Government and to what has been done in the area of intellectual disability in recent years.

This funding has brought about significant and unprecedented developments in the services. Between 1997 and 2002, around 1,700 extra residential places have been provided, with most of these based in the community. This figure includes new residential respite places which were developed in 1997 and 1998.

The Opposition parties had opportunities in the years between 1994 and 1997. If anyone has seen what was required to be done, had the com mitment and put the necessary funding in place it is the PD/Fianna Fáil Government. We have made an enormous contribution to what is now in place. We have provided base core funding and are ensuring that it remains.

Between 1999 and 2002, about 465 dedicated respite places were also provided. In addition, the period from 1997 to 2002 saw the provision of around 2,950 new day places. I recognise that despite this significant investment, demographic factors are contributing to growing waiting lists for residential services in particular, even though the number of people in receipt of services, including full-time residential services, continues to increase.

I assure the Deputy that my Department will work closely with the health boards and other service providers in relation to service provision, including issues such as those raised by Deputy Ryan.

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