Wednesday, 19 June 2013

Questions (219)

Simon Harris

Question:

219. Deputy Simon Harris asked the Minister for Health the steps being taken to ensure the continued preservation of guthrie cards that have the potential to provide a life-saving genetic diagnosis to at-risk family members of young sudden cardiac death victims following his decision to halt the destruction of the cards last March; and if he will make a statement on the matter. [29581/13]

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Written answers (Question to Health)

In the wake of mounting concern from a range of respected bodies about the potential value into the future of the loss of the material, and in the context of low public awareness of the issue, I requested that no destruction of the cards takes place pending legal advice from the Attorney General prior to further consideration on how to archive the material in a manner that satisfies the concerns of the Data Protection Commissioner.