Wednesday, 19 June 2013

Questions (219)

Simon Harris


219. Deputy Simon Harris asked the Minister for Health the steps being taken to ensure the continued preservation of guthrie cards that have the potential to provide a life-saving genetic diagnosis to at-risk family members of young sudden cardiac death victims following his decision to halt the destruction of the cards last March; and if he will make a statement on the matter. [29581/13]

View answer

Written answers (Question to Health)

In the wake of mounting concern from a range of respected bodies about the potential value into the future of the loss of the material, and in the context of low public awareness of the issue, I requested that no destruction of the cards takes place pending legal advice from the Attorney General prior to further consideration on how to archive the material in a manner that satisfies the concerns of the Data Protection Commissioner.