The Health Research Consent Declaration Committee was provided for in the Health Research Regulations made under the Data Protection Act 2018. The purpose of those Regulations is to bring much needed clarity, consistency and certainty to the processing of personal data for health research purposes and to promote health research through greater public support.
I am happy to advise the Deputy that the Consent Declaration Committee provided for in those Regulations has been appointed and was publicly announced on 22 March.
Consistent with its role, the Committee contains a diverse mix of persons from different backgrounds, including members of the public, patients and carers. The Chairperson is Brigid McManus former Secretary General of the Department of Education and Skills. The Committee will have its first meeting on 27 March.
The secretariat to the Committee has also been appointed and the Committee's website is www.hrcdc.ie where a full list of Committee members and biographies can be found.