Friday, 6 September 2019

Questions (906)

Catherine Murphy

Question:

906. Deputy Catherine Murphy asked the Minister for Health the level of access a company has to Guthrie cards in the archives of Temple Street Hospital; if he has granted the company access and-or view and-or use of Guthrie cards for purposes in each of the years 2016 to 2018 and to date in 2019; if so, the name of the companies; and if he will make a statement on the matter. [35198/19]

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Written answers (Question to Health)

The policy for the National Newborn Bloodspot Screening Programme requires parental consent for the primary use of screening (a baby) for 8 rare conditions. Any secondary use (including research) requires explicit parental consent for that secondary use.

Commercial companies are not given access to Guthrie cards.