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Health Research Board

Dáil Éireann Debate, Tuesday - 7 July 2020

Tuesday, 7 July 2020

Questions (841)

Róisín Shortall

Question:

841. Deputy Róisín Shortall asked the Minister for Health further to Parliamentary Question No. 516 of 23 June 2020, the measures his Department is taking to safeguard the rights and interests of data subjects and to create a robust governance structure in line with general data protection regulation, particularly in cases in which access to data will be determined by a commercial entity; and the instruments in place to grant data subjects their right to information and access with regard to their personal data. [14414/20]

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Written answers

The General Data Protection Regulation sets out the principles governing the processing of personal data, the obligations on data controllers and data processors in relation to their processing of personal data and the rights of data subjects in relation to their personal data, including rights to information about the processing of their personal data and access to it. The Data Protection Act 2018 gave further effect to those principles, obligations and rights. In the area of processing personal data for health research, the previous Minister for Health made Regulations setting out suitable and specific safeguards for data subjects in relation to such processing.

Data controllers, whether they are public bodies or private commercial companies, must meet their obligations which includes ensuring that individuals can exercise their data protection rights.

Compliance with data protection law is a matter for the Data Protection Commission and any specific concerns with compliance in respect of any aspect or any data controller should be brought to the attention of the Commission.

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