Dáil Éireann Debate, Thursday - 22 April 2021
124. Deputy Holly Cairns asked the Minister for Health the status of the cross-Departmental report on Prader-Willi syndrome; when it is expected that the report will be published; the reason for the delay; and if he will make a statement on the matter. [20873/21]
View answerThe Government is committed to providing services and supports for people with disabilities which will empower them to live independent lives, provide greater independence in accessing the services they choose, and enhance their ability to tailor the supports required to meet their needs and plan their lives.
I met with representatives of the Prader-Willi Syndrome Association of Ireland (PWSAI) on the 4th February this year and I must say that the Prader-Willi syndrome Report is very much welcomed and a reflection of the commitment of PWSAI.
It was proposed to enlist the wider support of other stakeholders in conjunction with the Health Service Executive (HSE) to formulate an implementation plan.
I am informed by the HSE that this process is being undertaken with a view to publishing the report, and establishing a working group to develop a model of integrated clinical care that will take into account the specific healthcare recommendations of this report.
As this is a service matter, I have asked the HSE to respond to the Deputy directly, as soon as possible.
