Rare Diseases

Dáil Éireann Debate, Thursday - 25 October 2018

Thursday, 25 October 2018

Ceisteanna (254)

Lisa Chambers

Ceist:

254. Deputy Lisa Chambers asked the Minister for Health the mechanism in place to facilitate patient engagement in order that the views of spinal muscular atrophy, SMA, sufferers and their families can be factored into a decision arrived at in view of the fact that the technical review committee on rare diseases comprises patient representatives also. [44420/18]

Freagraí scríofa

Minister for Health

The HSE has statutory responsibility for decisions on pricing and reimbursement of medicines under the community drug schemes, in accordance with the provisions of the Health (Pricing and Supply of Medical Goods) Act 2013; therefore, the matter has been referred to the HSE for reply to the Deputy.