Thursday, 11 April 2019

Ceisteanna (113)

Seán Haughey


113. Deputy Seán Haughey asked the Minister for Health if he will establish a registry for persons suffering from fibromyalgia; if fibromyalgia can be added to the long term illness list; and if he will make a statement on the matter. [16997/19]

Amharc ar fhreagra

Freagraí scríofa (Ceist ar Health)

The LTI Scheme was established under Section 59(3) of the Health Act 1970 (as amended).

The conditions covered by the LTI are: acute leukaemia; mental handicap; cerebral palsy; mental illness (in a person under 16); cystic fibrosis; multiple sclerosis; diabetes insipidus; muscular dystrophies; diabetes mellitus; parkinsonism; epilepsy; phenylketonuria; haemophilia; spina bifida; hydrocephalus; and conditions arising from the use of thalidomide. Under the LTI Scheme, patients receive drugs, medicines, and medical and surgical appliances directly related to the treatment of their illness, free of charge.

There are no plans to extend the list of conditions covered by the Scheme at this time. However, I wish to inform the Deputy that it is proposed that the LTI Scheme would be included as part of a review of the basis for existing hospital and medication charges, to be carried out under commitments given in the Sláintecare Implementation Strategy.

The establishment of a Registry of patients suffering from fibromyalgia is a service matter and as such this PQ has been referred to the Health Service Executive for attention and direct reply to the Deputy.