Dáil Éireann Debate, Tuesday - 15 September 2020
474. Deputy Marc MacSharry asked the Minister for Social Protection the reason the disability allowance assessment criteria for those living with myalgic encephalomyelitis is not representative of the WHO classified neurological disorder myalgic encephalomyelitis (details supplied); and if she will make a statement on the matter. [24081/20]
Amharc ar fhreagraMyalgic Encephalomyelitis (or encephalopathy) (ME) is a complex debilitating disorder which is characterised by severe fatigue accompanied by a range of other symptoms. ME is sometimes known as Chronic Fatigue Syndrome (CFS).
I am informed by my colleague the Minister for Health that there is currently no known, specific, medical diagnostic test to determine or confirm a correct diagnosis of ME and no specific treatment which works for all sufferers is currently available. I am also advised that, as a result –
- clinical assessment and the design of care plans need to be tailored to the individual patient;
- there are assessments and tests which can be carried out in primary care settings by a General Practitioner;
- specialised tests may be required when considering and ruling out other diagnoses;
- relevant specialists are usually accessed through out-patient clinics at secondary care level; and
- the General Practitioner is regarded as best placed to refer patients, if appropriate.
The medical review and assessment section of my Department exercises due care and diligence in assessing all applications for illness, disability and caring schemes.
Disability Allowance is a means-tested payment for people with a specified disability whose income falls below certain limits. The criteria which must be satisfied to qualify for Disability Allowance are:
1. The person must be suffering from an injury, disease, congenital deformity or physical or mental illness or defect which has continued or may reasonably be expected to continue for a period of at least a year
2. As a result of the condition and for no other reason, the person is substantially restricted in undertaking work which would otherwise be suitable having regard to the person's age, experience and qualifications.
3. Aged between 16 and under 66
4. Satisfy a means test
5. Habitually resident in the State
The medical assessment process does not dispute or refute a given diagnosis, as it is not the diagnosis per se that establishes eligibility; rather it is how the person is affected as a result of his or her diagnosis, medical condition or impairment that is taken into consideration in the assessment process.
I hope this clarifies the matter for the Deputy.
