Dáil Éireann Debate, Thursday - 16 June 2022
478. Deputy Mary Lou McDonald asked the Minister for Health if there are plans to engage with the families of the 35 children with a diagnosis of cystic fibrosis who cannot access the drug therapy katftrio; and if he will provide an update or information on the ongoing situation facing children. [31509/22]
Amharc ar fhreagraSince I was appointed Minister for Health, I have at all times prioritised the needs of patients and I have at every opportunity, made myself available to meet with patients and patient groups.
Kaftrio has been a life changing drug for Cystic Fibrosis sufferers, and I want to see it made available to everyone who needs it.
I am advised that commercial discussions between the HSE and the manufacturer on extending the availability of the drug to these children are at a very sensitive stage, and that it would be inappropriate for me to engage with patient groups while those discussions are ongoing.
I certainly would not want to jeopardise those negotiations, which I hope can be brought to a satisfactory conclusion for everyone in the next few weeks.
I will be more than happy to meet with patient groups as soon as it is appropriate for me to do so.
