Dáil Éireann Debate, Wednesday - 22 January 2025
1412. Deputy David Cullinane asked the Minister for Health if he has considered funding access for children with diffuse intrinsic pontine glioma to a trial (details supplied); if he is aware of any other EU Member States which facilitate or do not facilitate this; and if he will make a statement on the matter. [46758/24]
View answerA patient’s participation in any trial is a decision for them, their legal guardians and specialist clinical team. My Department provides significant funding for the health research environment which includes clinical trial infrastructure for trials taking place in Ireland, as opposed to access to specific trials in particular locations. Over the past 15 years my Department has invested 150 million euro into trials and research services infrastructure.
Other EU Member States are at various stages of maturity in developing their national trials infrastructure and funding structures. Within the various jurisdictions, payment cover of trials will vary significantly depending on the trial type, trial sponsor and sponsor cover.
