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Dáil Éireann debate -
Wednesday, 9 Apr 2003

Vol. 565 No. 1

Services for People with Disabilities.

I thank the Ceann Comhairle for the opportunity to raise the lack of services for people with intellectual disabilities. Last night, I attended a packed meeting in the Mansion House in Dublin. Families from all over Ireland travelled to the meeting. It was refreshing to see the Minister of State, Deputy Tim O'Malley, present to listen to the views and concerns of the parents. We must listen to the parents of children and adults with disabilities, understand them and act through the provision of quality services.

The present situation is a nightmare for many families. I urge the Minister to act, particularly this year when the Special Olympics will be held in this country. This is the largest sporting event to take place in Ireland. A total of 7,000 athletes and 3,000 coaches will visit this country and compete in different sports. Over 150 countries will be represented. We are proud of that and everybody should get behind our team.

However, will the Government tell these athletes and the world about our waiting lists for people with disabilities? The situation is scandalous. A total of 1,711 people need full-time residential service, 861 people need a day care service, 1,014 people need a respite service, 462 people are without any service while 485 people are in psychiatric hospitals. This is a human rights issue. There seems to be nothing special about these Irish citizens. Will the Government enjoy the positive side of the events while, at the same time, ignoring the crisis for people with intellectual disabilities?

This scandal should be exposed. On the north side of Dublin, St. Michael's House provides an excellent service but there are massive waiting lists. There are now 345 people waiting for residential places. Many of them have elderly parents. In the current year St. Michael's has been allocated 11 residential places. Thirty of these people are in extreme need. Capital moneys which were promised for 2002 have been effectively withdrawn and are under review. Seven of the people on the waiting list have parents who are seriously ill, some of them terminally ill.

This is the real world for the families of people with intellectual disabilities. There have been five years of economic boom and the Celtic tiger. The Government should act immediately. Many parents believe cases dealing with the lack of services should be brought before the European Court of Human Rights. I support the Irish Wheelchair Association's efforts to highlight the fact that an estimated 6,000 people are waiting for grants. In human terms this means the ability to install a stairlift, a downstairs toilet and washing facilities. This is just another example of the lack of care and concern on the part of the Government.

For many families of people with physical and intellectual disabilities the situation is getting worse. In the past few weeks alone, I have dealt with a number of queries on disability services. The family of one child with a severe intellectual disability cannot get respite care while the family of a child who is visually impaired cannot get a school for next September. Many of them have to travel outside the State to get services. A man with a physical disability cannot get rented accommodation because his weekly allowance is inadequate. I have dealt with many other cases.

Clearly, there is a major crisis in the services. Many people feel excluded. There is a long way to go before we create a so-called just society. There is, however, a way around the problem. The Minister could introduce a disability Bill that would guarantee services as a matter of right. Rights-based legislation is the way forward. After listening to the parents at last night's meeting, the least the Government can do is bring forward rights-based legislation.

On behalf of my colleague, Deputy Martin, I thank the Deputy for raising this issue and for giving me the opportunity to outline the position in this regard. Given that an Independent Deputy has raised this matter, it should be pointed out that the Government, with the support of Independent Deputies, has since 1997 allocated significant levels of funding across the disability sector, which has resulted in significant and unprecedented developments in health-related services being provided to people with disabilities.

Additional funding has been put in place in numerous areas. A total of €288 million has been made available to these services in recent years and this sum is built into the ongoing budget base. Approximately €100 million in additional ongoing revenue has been provided for the maintenance and development of services to people with physical and sensory disabilities. A significant proportion of this funding, over €20 million, has been provided for home support services and a further €81 million has been provided in once off grants for capital projects and issues such as the provision of technical aids and appliances. There have been other developments in this area, too, regarding removing some of the bureaucracy and obstacles to drawing down such grants.

Between 1997 and 2002, an extra €188 million revenue and €139 million capital funding has been provided, making a total additional investment of €327 million for the maintenance and development of services for persons with an intellectual disability and those with autism. Included in this funding is €27.2 million which was allocated to meet identified needs in existing services. The additional funding provided by this and the previous Government between 2000 and 2002 was used to put in place, in addition to a range of other services, over 900 residential, 380 respite and around 2,000 new day places for people with an intellectual disability and those with autism.

In the current year, further additional funding has been allocated to services for persons with an intellectual disability or autism to meet the full year cost of the 2002 developments and to further enhance the health-related support services for children with an intellectual disability or autism. This funding brings the total extra investment in these services to €340 million over seven years. Of this total amount, over €200 million has been built into the ongoing budget base.

Most people will agree that many additional services are in place because of the commitment this and the previous Government have to the required improvement to such services. However, I agree with the slogan that a lot has been done and there is more to do. That is particularly true in this area. We have done a lot and it would be unfair not to recognise that. Indeed, given the additional funding that has been made available recently, the services were probably operating at their maximum capacity. Equally, I acknowledge that there is a lot more to be done and it is the Government's intention to do so. I recognise that there are growing demands and requirements in the area and it is our intention to address them.

The Government has been proactive with regard to the disability Bill. The Government gave a commitment in An Agreed Programme for Government, in June 2002, to complete consultations on the disability Bill and to bring an amended Bill through the Oireachtas, including provisions for rights of assessment, appeals, provision and enforcement. With the recent conclusion of the consultation process initiated by the Government, and in view of the cross-cutting and complex nature of the issues arising in this context, the process of overseeing the preparation of the new disability Bill has been referred by the Government to the Cabinet sub-committee on social inclusion. I am sure the Deputy will welcome these developments.

This referral is expected to expedite the process, with the result that the publication and enactment of the disability Bill can be achieved in 2003, in line with the commitment given in the new partnership agreement Sustaining Progress. At this stage in the process, I am not in a position to comment on the precise nature or scope of the proposed legislation, or to speculate on the provisions which it might contain. I believe, however, that the Deputy who raised the question will welcome it.

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