I currently hold the position of national lead for disability services. My submission to the committee follows on from a previous meeting with the Joint Committee on Health and Children on 24 June 2008 when my predecessor, Mr. Ger Reaney, outlined the background to the establishment of the inquiry by the Western Health Board into allegations of abuse in two facilities overseen by the Brothers of Charity in Galway, the subsequent publication of a report by Dr. Kevin McCoy and some of the actions taken by the HSE to coincide with completion of the report. Subsequently, in April 2009, the Department of Health and Children published the Hynes report, a review of the circumstances surrounding the lapse of time in completing the inquiry.
I will focus on actions taken subsequent to completion of the McCoy and Hynes reports with respect to the recommendations in both and will concentrate on the key pertinent points in my opening statement, which was circulated. The full submission includes implementation of the recommendations of the McCoy report on the Brothers of Charity services, findings in the Hynes report on actions taken by the HSE to address these findings and implementation of recommendations of the McCoy report in respect to all services for people with disabilities.
In December 2007 the HSE published the McCoy report on the investigation of allegations of abuse in certain facilities for people with intellectual disability under the direction of the Brothers of Charity in Galway. This followed a lengthy investigation which had been initiated by the Western Health Board in 1999. The report made a series of recommendations and the HSE immediately initiated an action plan to address these. With regard to the Brothers of Charity services in Galway and all other disability services managed by the agency, in counties Roscommon, Clare, Limerick, Cork, Kerry, Waterford and Tipperary, a programme of action based specifically on each recommendation from the McCoy report has been put in place. Regular meetings have been and will continue to be held with the Brothers of Charity services at national and local levels with regard to monitoring, on our behalf, the progress in implementing these recommendations.
This is a brief outline of the comprehensive progress achieved in the following specific areas within the Brothers of Charity services. This programme for implementing the recommendations in the McCoy report is monitored and tracked against a detailed and comprehensive template that relates to each recommendation. All clients are now assessed before being admitted to a service, using formal assessment instruments. The Brothers of Charity services have produced information leaflets and a website for service users and their families to explain what the service has to offer and how it will be provided. A person-centred plan is developed for each service user by a multidisciplinary team, in conjunction with a client and his or her family or carer prior to admission to a service. The majority of existing service users have a person-centred plan which is updated on an annual basis. All person-centred plans specify a review date. All service users receive induction, a tour of local services and introduction to staff and a key worker. Record systems across all Brothers of Charity services have been reviewed, to ensure that all relevant information is accessible to those who require it. Training has been provided in report writing and the maintenance of records. Records in all services are audited annually by a senior manager. A standardised report form for recording concerns and allegations of abuse has been introduced for use by all staff across all services nationally.
The Brothers of Charity have finalised two national governance documents for the protection and welfare of children and adults, respectively. The children's document has been reviewed by the HSE and recommendations from the HSE are currently being incorporated into the Brothers of Charity protection of vulnerable clients as part of mandatory training for all staff and included in the staff induction programmes for all new staff within a maximum of three months of commencing employment.
A strategic plan has been prepared for training of staff and service users in the areas of personal development, relationships and sexuality, based on the Brothers of Charity Guidelines produced in 2007. The training includes awareness for all staff, service users and families. A code of conduct has been developed and implemented for staff in all Brothers of Charity services and has been given to all staff. The complaints policy in Brothers of Charity services has been revised and is now compliant with the requirements of the Health Act 2004. Structures to facilitate adult service user advocacy have been put in place at local and national level.
Studio 3 training in dealing with service users who present with challenging behaviour, is part of mandatory training in areas where challenging behaviour is present. The Holy Family school now provides awareness training on child protection for all staff on an annual basis. All current staff have received training and training is ongoing for new staff. A code of conduct for teachers and other personnel in the Holy Family school, to safeguard the children attending the school, was approved by the board of management of the school in March 2008 and it is now part of the school's policies and procedures. Information on the school's child protection policies and procedures is made available to all parents and staff.
Work continues on planning for the transfer of clients from a number of inappropriate settings in the Brothers of Charity services and the fulfilment of a closure plan for Kilcornan Residential Centre in Galway. Some 32 individuals have relocated to community residences using existing resources, supplemented by €953,000 additional funding from the HSE.
There has been active and positive engagement by the Brothers of Charity at national and local level with the HSE on implementation of the recommendations of the McCoy report.
In April 2008, the Government announced that it had asked Mr. John Hynes to prepare a report into the delay in completion of the investigation of the Brothers of Charity facilities. Mr. Hynes forwarded his report to the Department of Health and Children and it was brought to Government in March 2009. The Hynes report states that the delays in completing the investigation into the Brothers of Charity facilities arose primarily from deficits in the terms of reference, the way they were devised, arrangements for the management of the inquiry process, the absence of a full range of skills and supports required by the inquiry and the loss of key members of the inquiry team.
The report recommends that the establishment of investigations and inquiries should include clarity of purpose from the outset with an agreed programme of work with realistic timescales and arrangements for the resourcing and management of the project together with arrangements for corrective action to deal with emerging issues. The report also recognises that, with the establishment of the HSE, steps were taken in August 2005 to bring the investigation to a speedy and satisfactory conclusion. It acknowledges the determination of HSE management to take a comprehensive approach which also involved establishing appropriate processes to deal with issues arising from the inquiry and notes that the Health Service Executive "managed to complete the process efficiently and without any unnecessary lapse of time".
Prior to its completion in August 2005, following the establishment of the HSE, immediate steps were taken to complete the inquiry in a comprehensive manner. Initially this was addressed through the provision of additional support for the chair of the inquiry. Subsequently, following the resignation of the chair, for personal reasons, Dr. Kevin McCoy was asked to prepare a report on the areas covered by the investigation. The HSE has reviewed the findings of the Hynes report and fully accepts the recommendations.
In addressing the findings of the Hynes report, I will set out a brief summary of the action and progress made by the HSE in strengthening the corporate governance arrangements with service providers, statutory and non-statutory, and the improvements in policies and procedures designed to further protect vulnerable adults and children who avail of services. Since the establishment of the initial investigation into the Brothers of Charity facilities in Galway, substantial changes have taken place in the way inquiries and investigations are established and managed in public health services.
In April 2009, the HSE management team approved the work of a HSE investigation process working group whose main purpose is to standardise, simplify and strengthen complaint and incident investigation processes in the HSE. It is planned that a draft single investigation process based on the feedback from the staff and service user consultation and engagement workshops will be available in summer 2010.
The HSE recently adopted a serious incident management policy and procedure, which will enable managers and clinicians to oversee and safely manage serious incidents arising from the delivery of all aspects of care and service provision. The policy and procedure outlines the steps that must be taken by each manager to identify and act on serious incidents that occur within their own service. It follows an extensive review of existing procedures and findings from investigations or serious incidents reviews already completed. The policy and procedure will be used in circumstances where a national or integrated response is required to manage the issue. It is also designed to allow the HSE as a whole organisation to learn from serious incidents, to prevent their recurrence.
The HSE has developed a draft procedure for Garda vetting of existing employees in the HSE, voluntary hospitals and agencies in the intellectual disability sector, working with children and-or vulnerable adults. The procedure outlines the steps that need to be taken to comply with the non-discretionary requirements set out in relevant legislation and by regulatory bodies. It is aimed at ensuring a fair, equitable and consistent approach to vetting and assessment of employees in fulfilment of these obligations. These procedures which have been put in place for the establishment and management of inquiries and investigations address all of the issues raised in the Hynes report.
Significant progress has been made in the development of standards and guidelines for best practice in residential services for people with intellectual disabilities. HIQA has developed and published two sets of standards — one for adults and one for children — which will impact on the delivery of residential care within disabilities by the HSE by the end of 2010. Ms Bairbre Nic Aongusa will refer to this in greater detail in her submission. Prior to this and in the absence of national standards for residential services for persons with disability, the HSE prepared guidance documents in respect of children and adult services which outline the quality of care which should be provided in these services. These documents informed the HSE input into the development of the HIQA standards and provided a level of assurance and direction in respect of quality of services in advance of the HIQA standards being published. It was agreed in 2009 by the Department of Health and Children, the HSE and HIQA that progressive non-statutory implementation of the adult standards should commence.
Action 40 of the Ryan implementation plan commits to commencing the Health Act 2007 to allow the independent registration and inspection of all residential centres and respite services for children with a disability by December 2010. In respect of standards for residential services for adults with disabilities, given the current economic situation, full statutory implementation of the standards, includes regulation and inspection. The provision of significant resources required for this presents significant challenges at this time. However, the Department of Health and Children, the HSE and HIQA have agreed that the standards will be implemented, initially on a non statutory basis and that they will become the benchmark against which the HSE and non-statutory providers assess their facilities. The HIQA standards will also be included in the service level agreements as part of the quality standards which need to be adhered to by all service providers. In preparing for implementation of the standards, work has commenced to prepare a validated data set of all locations nationwide where residential disability services are provided. The standards have been circulated and a programme of awareness training is commencing.
Over the past three years, there have been key service reviews and strategies to move disability service provision locations away from institutional segregated settings and into the community. In particular two comprehensive reviews of day and residential services nationally have been carried out by the HSE. Again Ms Bairbre Nic Aongusa will make further reference to these in her submission. The resulting recommendations from these reviews will guide the development of a national plan and change programme for transferring people with disabilities from segregated settings to the community. Pending adoption of both reports as policy, and in the context of the current value for money and policy review currently under way, the implementation plans will be developed in all four HSE regions involving the relevant service providers.
The HSE is committed to undertaking an audit of incidents of abuse in residential and day services for people with intellectual disability. Working with the National Federation of Voluntary Bodies, we have commenced the process of a national review and audit of client protection issues within the statutory and non-statutory intellectual disability services. Phase one of the project is to develop a questionnaire exploring demographics of service organisations, review of their policies, procedures, and training relevant to client protection. It will also include a review of the numbers of allegations of abuse at any stage of the process in 2008. The phase one questionnaire is ready for dissemination in the coming weeks and it is anticipated that the collection of the questionnaire will be completed by October 2010. The research for phase one has been granted ethical approval by the RCPI. The statutory and voluntary organisations within the National Federation of Voluntary Bodies have been alerted to the imminent delivery of the questionnaire.
Phase two will involve a more in-depth on-site audit of a targeted sample of organisations, involving interviews with key individuals, for example, chief executive officers, designated persons and front line staff members. It will also involve an audit of relevant records. The output of phases one and two should result in a final report, which incorporates a literature review of best practice, benchmarked against areas such as staff training-knowledge and skills, management of allegations and implementation of policies and procedures.
The HSE is committed to providing safe and quality care and has put in place a range of standards, guidelines and procedures to protect all service users, with a particular focus on children and vulnerable adults from potential abuse or harm by service providers. The service level agreements that are required to be signed by all non-statutory providers ensures that every service provider is required to have appropriate mechanisms in place to assess quality and standards for the delivery of all services. This agreement requires all service providers to comply with relevant legislation, statutory regulations, codes of practice and agreed guidance documents in relation to the standards associated with the service in question.
While child protection is covered by legislation, this does not apply to adults who may by reason of disability, illness or age be vulnerable to abuse of one form or another. The care safe standards and guidelines were developed by the HSE to ensure the needs of these service users are recognised and addressed. These standards and guidelines address the risk of abuse or harm to all service users but particularly for defined vulnerable persons while in receipt of health care services from HSE service providers. The standards and guidelines cover the following areas: protection of service users; human resources and service providers conduct; consent; providing services, clinical interventions and treatments; medication, restraint and managing challenging situations; and wills and associated financial management issues.
In agreeing these standards the HSE has reviewed all relevant current HSE policies, procedures and good practice standards and guidelines. It is a requirement that all managers within the health service ensure that service providers are aware of the standards and guidelines outlined in this document.
A good faith reporting policy is developed that sets out how all employees are encouraged to raise genuine concerns about possible improprieties in the conduct of the HSE's business, whether in matters of financial reporting or other malpractices, at the earliest opportunity and in an appropriate way. The HSE integrated risk management policy document sets out the HSE's governance structure for the identification, measurement, assessment and management of risk. It also sets out how this function assists the HSE achieve its objectives through the adoption of a systematic, comprehensive and integrated approach to risk management.
The systems and processes outlined above constitute a summary of the pertinent areas of work relative to today's discussion. In the context of the wider HSE system of service provision to people with intellectual disabilities, progress is being made by the HSE in developing a strong quality and risk management framework that guarantees clear accountability between any agency or organisation providing services on behalf of the State for people with disabilities and the HSE. I will be happy to elaborate further, as required.