I move:
That Seanad Éireann calls on the Minister for Education to recognise and make provision for the special educational needs of children with autism.
It is my pleasure to move this motion in the name of my party colleagues. I am sad that there is an amendment down because while one would not wish to stymie debate in this Chamber, I do not think the issue is politically contentious. It is an issue of how we care about people who have difficulties.
Autism is a lifelong disability which devastates the lives of hundreds of children and adults in this country. Children with autism have severe impairments in the development of communication, social awareness and behaviour. The consequence is a child who has great difficulty understanding the world, which can become a frightening place, full of incomprehensible sounds, sensations and activities, a truly frightening world in which to live.
Although autism is frequently associated with a degree of mental handicap, children with autism may be of normal intelligence but will never be able to appreciate the good things in life such as friendship, real communication or social contact. As yet there is no cure for autism but children with autism respond, often very dramatically, to specialised education suited to their needs. It is now internationally recognised that full, classic autism affects an estimated four in 10,000 of the population but up to 20 in 10,000 exhibit so many of the symptoms that they are usually included within what is known as the autistic continuum.
On that basis, one can argue that there are between 300 and 1,500 children between the ages of four and 18 years with autism in this country. A small number of these children will enjoy appropriate education in specialised environments suited to their needs. Sadly, the vast majority of children with autism will end up in unsuitable situations and, more often than not, they will be misplaced as adults in totally unsuitable long-stay psychiatric or large mental handicap institutions and hospitals. This is a tragedy for them. It is a tragedy for their families and it is a tragedy for this country.
Government policy states specifically that the individuality of each mentally handicapped person must be recognised and that care must be related to specific need. This being so, it is imperative that the Department of Education should fully recognise, without question, the individuality of persons with autism and draw up programmes to cater for their specific needs. Since the educational and training needs of the person with autism is multi-disciplined, both the Department of Education and the Department of Health must co-operate closely and use their respective expertise to alleviate the plight of all persons with autism.
In this context, it is worth recalling that in 1980 the White Paper on education development identified the need to enable children in special education to continue their schooling at second level. They were noble sentiments but the situation on the ground is less than admirable. At present it would appear that the Department of Education provides no national guidelines for the education of children with autism. Some voluntary programmes, enthusiastically drawn up, exist but because of the non-involvement of the Department of Education with its fund of teaching expertise, these programmes lack the professional input which the Department inspectorate could contribute.
The education and training of the child with autism must take place in four areas: first, the home; secondly, the school; thirdly, the residential home and, finally, in the community. The care of the child with autism must be multi-disciplinary. The education and training needs of the child require at all stages special skills from the personnel involved; not only special skills but also particular dedication. Since the education and training of many of these children is on a 24-hour a day basis involving the home, the school and the residential centre, the normal school management structures clearly do not apply. As a consistent school programme is vital throughout the years these children must not be discharged for the two or three months of the summer nor must their education and training be interrupted for the usual Christmas or Easter breaks.
It is very important that children be integrated into the family structure so that social behaviour at each stage of their development will be as normal as possible. If this policy is followed, difficulties in acquiring acceptable social behaviour at a later stage will be averted. There is a considerable financial benefit to the State in investing in training at this stage to avert the problems later.
This all points to the need for co-operation between the professionals, particularly the professionals in the Department of Education, and the family. It points in particular to a need for the Department of Education to appoint visiting specialist teachers from a special education section to focus on children with autism.
While on the subject of schools, I cannot avoid reference to the special school which operates in James Connolly House at Blanchardstown. My colleague, Senator McGennis, wishes to refer to that. I suggest to the Minister — and it was suggested to the Minister in the Dáil recently — that urgent attention is required there.