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Seanad Éireann debate -
Thursday, 29 Apr 1999

Vol. 159 No. 4

Adjournment Matters. - Autism Services.

I thank the Cathaoirleach for selecting my matter for discussion on the Adjournment. I call on the Minister for Health and Children, Deputy Cowen, to allocate the necessary funds to the Western Health Board to provide a comprehensive service for the treatment of people with autism in County Roscommon. I tabled this matter following a public meeting which I and the Cathaoirleach attended in Castlereagh, County Roscommon last Monday night where the need to provide a service for people with autism in the county was outlined to public representatives and others.

At present a service is being provided in Strokestown by a dedicated group, which set up the service under the EU STARR initiative. It is most successful and deals with up to eight people with autism. The group's concern is that the project is funded only until December and there is no commitment for funding after that date. The group is using a leased property and it wants to know in good time the arrangements for 2000 so it can enter a further contract with the owner of the property and continue to provide the service.

I tabled the matter to ensure that the Minister is aware in good time of the difficulty facing this group which is providing a wonderful service for people with autism in Strokestown. The Western Health Board should be in a position to inform the group in the near future of the funding that will be made available to it for next year. It will be too late to give this information to the group in the autumn or later in the year. The group must know what finance will be made available to it in good time to ensure that the current arrangements can continue and it can enter new contracts.

The programme has a total cost of just over £200,000, involving personnel costs of approximately £90,000 and non-pay items of approximately £116,000. The personnel element is kept to a minimum and involves a project leader, two supervisors, a nurse, a driver and a clerical officer. The costs also include PRSI payments, giving a total of £87,000. On the non-pay side, the cost of drugs, utilities, the bus lease, motoring, telephone and office expenses, subsistence and travel and other items such as teaching equipment amounts to £116,000. It will take just over £200,000 to provide this service for people with autism in the Strokestown area. I consider this a small sum and see no reason for the Department of Health and Children not to inform the Western Health Board that it will allocate the necessary funds to it, which in turn will distribute them to the Brothers of Charity who administer this programme in Strokestown.

However, that is not the full story regarding the treatment of people with autism in County Roscommon. Only eight people are catered for in that centre. Approximately 35 people need treatment for autism in County Roscommon. I have asked the Brothers of Charity, who hope to put together a programme for people with autism in the county, for a costing and projections. They informed me that to cover the whole county they would need an additional £330,000. That money would cover important personnel – they would need a social worker, a psychologist and a speech therapist. Those three disciplines are basic to any programme to treat people with autism. They are keeping to the basic minimum. On the non-pay side they mentioned establishing a residential and day centre with administrative back-up and updates etc.

I reiterate that this matter has two parts. First, I seek a statement from the Department that adequate funds will be provided to the Brothers of Charity to continue the service in Strokestown after December this year. Second, I want the Department of Health and Children to investigate providing funding for a facility and treatment for people with autism in the whole county and I have put forward the figures for that.

I checked the existing position with the Western Health Board and what I found out was disturbing. Counties Galway and Mayo have programmes to deal with autism on a county basis, but the third county covered by the Western Health Board has no such programme. The total allocation from the Western Health Board for the treatment of autism in County Roscommon in 1999 was meagre £8,000 while over £500,000 was provided to the other two counties. That is a great injustice. We cannot have two counties taking all the money while one county is left without any money. County Roscommon has had to resort under its own initiative to setting up a programme with EU funding. Without that the county would have no programme for people with autism.

People in County Roscommon who suffer from autism are being neglected by the State and the health board as money is not being provided. Local people have provided a programme on their own initiative using EU funding but that will be gone in December. I ask for that money to be substituted with money from the Department paid through the Western Health Board to the Brothers of Charity who will administer it.

I want funding for a programme for people with autism in County Roscommon included in the overall funding of the Western Health Board for 2000. I also want people in County Roscommon to be given treatment equal to that which people in the other two counties in the Western Health Board area receive.

I hope I have made my position on the matter clear. I gave a commitment at a public meeting to have this matter debated in the Seanad. The Cathaoirleach was at that meeting and he has graciously allowed me to raise the matter and I thank him for it. I know he supports it totally. The programme is in his home town of Strokestown and he is well aware of it. He knows the people administering it and he fully supports what I am attempting to achieve. I hope the Minister will convey the wishes of the group and the parents and relatives of people with autism in County Roscommon to his Department. I hope the better deal we seek will be addressed by his Department in the coming weeks and months.

I thank Senator Finneran for raising this important matter and the Cathaoirleach for his interest in it. I reply on behalf of my colleague, the Minister for Health and Children, Deputy Cowen.

Since his appointment and despite the many competing demands which are made on the resources available to the Department, the Minister, Deputy Cowen, has consistently identified as one of his priorities the provision of the additional residential, respite and day services outlined in the document Services to Persons with a Mental Handicap – An Assessment of Need 1997-2001. This assessment of need is based on information from the national intellectual disability database and provides details of the current and future needs of persons with a mental handicap and those with autism. It has also identified the amount of funding required to meet these needs over the period 1997 to 2001 as being £63.5 million.

This year the Minister was pleased to be in a position to provide additional funding of £12 million, with a full year cost of £18 million in 2000, for the further development of new services in line with the requirements identified in the assessment of need. This £12 million is in addition to the £6 million already allocated to the services in 1999 to meet identified needs in existing services. This brings the total additional funding pro vided in 1999 for the services to £18 million, with a full year cost of £24 million in 2000.

Additional capital funding of at least £10 million is also being made available to support this year's developments. This funding is part of the £30 million national capital programme for services to persons with a mental handicap and those with autism which the Minister put in place towards the end of 1997.

Of the additional revenue funding provided in 1999, £1.595 million has been allocated to the Western Health Board for new developments, with a full year cost of £1.965 million in 2000.

There is a regional mental handicap co-ordinating committee in place in the Western Health Board region which is representative of the health board, voluntary agencies and families of persons with a mental handicap and those with autism. The function of the committee is to identify priorities for service development and to co-ordinate the provision of services, including services to persons with autism, from the additional resources provided. While new services specifically for persons with autism have been, and will continue to be developed, many persons with autism are in receipt of services within the mental handicap services. These people will benefit generally from the development of new residential, respite and day services in line with the needs identified by this committee.

Specific autism services are available in the Western Health Board and continue to be developed in the board's region in line with my Department's policy document on services to persons with autism, which was published in 1994. As part of the implementation of the recommendations contained in that document, all health boards have been obtaining information on the needs of persons with autism in their regions and, in particular, on those who require or will require specialist services. I understand from the Western Health Board that a regional committee on autism was established earlier this year to examine the service needs of persons with autism in the region. The aim of the committee is to develop a five year strategic plan for services to adults and children with autism in the region.

Between 1995 and 1997, £502,000 was provided to the Western Health Board for the development of services specifically for persons with autism. This funding was allocated by the board in line with the priority needs which the co-ordinating committee had identified for the region.

The provision of educational services to children with autism is primarily the responsibility of the Department of Education and Science. However, health related support services are required by the children in these educational placements. These support services include speech and language therapy, psychology, social work and in-home support. Paediatricians, child psychologists and the child psychiatrist are involved in the early detection and diagnosis of childhood autism.

In this regard, and within the overall allocation for the development of new services in the Western Health Board region, £360,000 was provided in 1999 specifically to enhance the health related support services for children with autism, at a full year cost in the year 2000 of £460,000. While the major part of this funding was allocated to services in Counties Galway and Mayo, as the Senator mentioned, funding was also allocated to provide pre-school services to a number of children with autism in the County Roscommon region.

Following consultation with their regional committee on autism, the Western Health Board has recently contacted my Department concerning the future funding of services in Roscommon which meet the pre-vocational needs of young adults with autism. I understand that this service, called the STARR project, commenced under the EU Horizon programme. The funding arrangements for this initiative cover a two year period which will be completed at the end of this year. I would like to assure the parents and families who have relatives in this service that discussions on the future funding arrangements will be included in the overall discussions which will be taking place over the coming months between my Department and the board on identifying priority developments for the region in the year 2000.

The funding provided in 1999 by the Minister, Deputy Cowen, since his appointment as Minister, will bring the total additional revenue and capital funding to services to people with a mental handicap and those with autism to £53 million in 1999 and £59 million with effect from January 2000. It also underlines the Government's commitment to meeting the needs outlined in the assessment of need within the specified timeframe.

This Government looks forward to working in partnership with the health boards, voluntary mental handicap service providers and carers, including those in the Western Health Board, for the further development of services for persons with a mental handicap and those with autism, especially those in County Roscommon. There is an inequity there which I will bring it to the attention of the Minister.

I thank the Minister of State, Deputy Moffatt, for his comprehensive reply. I am encouraged with his statement on the services for autism in County Roscommon and look forward to a definite response and co-operation on this matter. This is welcome news for the people of County Roscommon, particularly for parents of children with autism. The words of encouragement and support will be welcome.

The Seanad adjourned at 4.55 p.m. until 12 noon on Wednesday, 5 May 1999.

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