Duchenne Muscular Dystrophy.

Dáil Éireann Debate, Tuesday - 10 November 2009

Tuesday, 10 November 2009

Questions (177)

Joe McHugh

Question:

234 Deputy Joe McHugh asked the Minister for Health and Children further to a statement by her Minister of State in Dáil Éireann on 4 November 2001 that he will meet with a group (details supplied) in a week or two, if he will arrange a meeting that will not coincide with the Treating MD/NIH neuromuscular conference that is scheduled to take place on 17 to 19 November 2009; if he will make contact with an organisation in Newcastle, England; and his plans to secure an clinician based here to lead clinical trials. [40485/09]

Written answers

Minister of State at the Department of Health and Children (Deputy John Moloney)

I have given an undertaking to meet with Duchenne Ireland as soon as possible. I will ensure that the meeting does not coincide with the conference scheduled for 17 to 19 November.

As I outlined in my reply to Oral Parliamentary Question No. 84 on 4 November, the issues raised by Duchenne Ireland are under active deliberation and receiving detailed consideration at the highest levels in the Department. I also pointed out that while the Department is working through the various issues raised by Duchenne Ireland, it may not be possible to come to a full resolution of all the issues that are of concern to them.