Dáil Éireann Debate, Tuesday - 19 January 2010
135 Deputy Phil Hogan asked the Taoiseach if he will consider the inclusion of a question in the 2011 census in order to fill a void in the statistics that relates to the disability autism or autistic spectrum disorder; and if he will make a statement on the matter. [47936/09]
View answer149 Deputy Ciarán Cuffe asked the Taoiseach when the content of the Central Statistics Office census 2011 is expected to be approved by him; the interdepartmental procedure for compiling such content; his views on the inclusion of autistic spectrum disorder as a category question; and if he will make a statement on the matter. [48497/09]
View answerI propose to take Questions Nos. 135 and 149 together.
The Government at its meeting on 11 December 2009 agreed to the topics to be included in the questionnaire for the 2011 census.
As part of the preparatory work for the 2011 census the CSO conducted a public consultation by inviting members of the public and various interest groups to make submissions on the topics to be covered, and on the outputs to be produced. A notice to this effect was published in the national press in September 2008 seeking submissions, and all government departments were contacted for their input.
A Census Advisory Group was set up in Autumn 2008 to consider the submissions received and advise on the questions to be tested in a pilot survey planned to be carried out in April 2009. The Census Advisory Group was representative of central and local government, the social partners, universities, research bodies and other users of census data along with the relevant CSO personnel.
Over 90 submissions covering 31 topics were received in total, among them submissions on the subject of disability, and in particular on the subject of autism. A specific sub-group was convened to consider the disability questions on the census form. This sub-group was composed of representatives from the National Disability Authority, the Equality Authority, the Disability Federation of Ireland and the National Federation of Voluntary Bodies. The proposal to list specific disabilities within the disability question, namely to make specific reference to autistic spectrum disorder, or downs syndrome, in the category ‘A learning or intellectual disability' was considered at the second meeting of the group.
The group concluded that it would not be appropriate, nor would there be enough room on the census form, to list all individual disabilities. However, in order to go some way towards accommodating this request the existing (2006) category ‘ A learning or intellectual disability’ was split into two categories ‘An intellectual disability’ and separately ‘A difficulty with learning, remembering or concentrating’ for testing in the pilot survey. The group felt that this approach narrowed the categories and thus helped address the issue of autism, while allowing the question to remain as inclusive as possible.
The new wording of the disability questions which were tested in the Census Pilot Survey in April 2009 were as follows:
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14Do you have any of the following long-lasting conditions or difficulties? |
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|
(a) |
Blindness or a serious vision impairment |
Yes [ ] |
No [ ] |
|
(b) |
Deafness or a serious hearing impairment |
Yes [ ] |
No [ ] |
|
(c) |
A difficulty with basic physical activities such as walking, climbing stairs, reaching, lifting or carrying |
Yes [ ] |
No [ ] |
|
(d) |
An intellectual disability |
Yes [ ] |
No [ ] |
|
(e) |
A difficulty with learning, remembering or concentrating |
Yes [ ] |
No [ ] |
|
(f) |
A psychological or emotional condition |
Yes [ ] |
No [ ] |
|
(g) |
A difficulty with pain, breathing, or any other chronic illness or condition |
Yes [ ] |
No [ ] |
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15If ‘Yes’ to any of the categories specified in Question 14, do you have any difficulty in doing any of the following? |
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|
(a) |
Dressing, bathing or getting around inside the home |
Yes [ ] |
No [ ] |
|
(b) |
Going outside the home alone to shop or visit a doctor’s surgery |
Yes [ ] |
No [ ] |
|
(c) |
Working at a job or business or attending school or college |
Yes [ ] |
No [ ] |
|
(d) |
Participating in other activities, for example leisure or using transport |
Yes [ ] |
No [ ] |
