Charlie McConalogue
Question:515 Deputy Charlie McConalogue asked the Minister for Health and Children the progress made to establish facilities for children (details supplied); and if he will make a statement on the matter. [11746/11]
View answerTuesday, 17 May 2011
Questions (482)
Written answers
There are a number of barriers and obstacles which exist in relation to the proposals in relation to Duchenne Muscular Dystrophy research, standards of care and the inclusion of Irish boys in international clinical trials, the most significant being the identification of a clinical lead in Ireland. My Department is awaiting a written proposal in relation to the development of a clinical trial site in Ireland and/or linking with European trials in the assessment and treatment of neuromuscular diseases. My Department has also asked the Health Service Executive's Clinical Care Directorate to consider the standards of care protocol in treating Duchenne Muscular Dystrophy in developing paediatric models of care for Ireland.