Tuesday, 26 February 2013

Questions (693, 707)

Pat Deering

Question:

693. Deputy Pat Deering asked the Minister for Health when the package of support promised almost 12 months ago for sufferers of narcolepsy disorder will be rolled out. [10037/13]

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Billy Kelleher

Question:

707. Deputy Billy Kelleher asked the Minister for Health the progress that has been made in compiling the memorandum to bring to Government in relation to comprehensive supports and services he has committed to establishing for sufferers of Unique Narcolepsy Disorder; if he will provide a date for when the memorandum will be brought to Government; and if he will make a statement on the matter. [10156/13]

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Written answers (Question to Health)

I propose to take Questions Nos. 693 and 707 together.

My priority is to ensure that children/adolescents affected by narcolepsy with symptom onset post pandemic vaccination are provided with services and supports to meet their health needs.

The HSE and the Department of Education and Skills together provide a comprehensive range of services and supports to those affected. The Health Service Executive through its advocacy unit and regional co-ordinators assist individuals affected by narcolepsy following pandemic vaccination and family members of those so affected, in accessing appropriate services and supports. These supports and services include access to rapid diagnosis, clear treatment pathways, temporary medical cards and reimbursement of expenses incurred. This includes expenses for counselling services for individuals and also for families of children affected by narcolepsy following pandemic vaccination, in cases where such services are not already available through the HSE. Multi-disciplinary assessments which allow for the appropriate individualised health and educational supports to be put in place are ongoing. The National Educational Psychological Service (NEPS) is also engaging with the HSE and with the individual schools and parents of children concerned to identify and provide educational supports for the children and adolescents affected.

My Department is considering other possible supports which may need to be put in place for those affected by Narcolepsy following pandemic vaccination.

Question No. 694 answered with Question No. 692.