Rare Diseases

Dáil Éireann Debate, Wednesday - 6 July 2016

Wednesday, 6 July 2016

Questions (224)

Tom Neville

Question:

224. Deputy Tom Neville asked the Minister for Health his views on correspondence (details supplied) regarding an exomphalos day; and if he will make a statement on the matter. [19986/16]

Written answers

Minister of State at the Department of Health

Exomphalos is considered to be a rare disease. There are approximately 8,000 rare diseases and Rare Disease Day is celebrated across Europe at the end of February every year. This day also has the support of the European Union and the day promotes awareness of a range of rare diseases.