Dáil Éireann Debate, Thursday - 22 June 2023
387. Deputy John Paul Phelan asked the Minister for Health his views on the ARDCI Rare Disease Pledge; whether he agrees with each of its recommendations; and if he will make a statement on the matter. [30430/23]
View answerWhile my Department is not familiar with the organisation referenced in the parliamentary question, the Deputy will be aware that I recently announced a plan to develop a revised National Rare Disease Plan, in line with the commitment in the Programme for Government.
The development of this new plan will consider areas of the previous Plan that need to be further progressed, while also looking to the future and the needs of those patients and families living with a rare disease diagnosis.
Initial work for the new plan has commenced, and due consideration is being given to how it can best meet the needs of patients and families affected by a rare disease.
