Michael Healy-Rae
Question:1196. Deputy Michael Healy-Rae asked the Minister for Health if his Department will consider extra funding for an organisation (details supplied); and if he will make a statement on the matter. [47907/23]
View answerTuesday, 7 November 2023
Questions (1196)
Written answers
Epidermolysis Bullosa (EB) is a rare, life-long genetic condition which causes fragile, blistering skin. There is no doubt that Epidermolysis Bullosa places a substantial medical, social, and financial burden on patients and carers. I fully appreciate the difficulties experienced by patients suffering from this painful condition.
Earlier this year I received a pre-budget submission from Debra Ireland detailing their proposals for increased funding for patients with EB. I would, at the outset, like to acknowledge the brilliant work carried out by Debra Ireland on behalf of patients and families impacted by EB in Ireland.
Regarding funding, following the announcement of the budget allocation for my Department, I will shortly be issuing a Letter of Determination to the HSE outlining my priorities and funding levels for 2024. This will be the basis on which the HSE will draw up its National Service Plan (NSP) for 2024. It is not until the conclusion of this process that a detailed breakdown of new development expenditure will be available.