I thank the committee for the honour and privilege of addressing it today. I want to introduce the proposed UN treaty on disability, the reasoning behind it and its expected benefits. My colleague, Kirsten Young, from Landmine Survivors Network, Geneva, will then address the committee on why this treaty is so important in the developing world. My colleague from the European Disability Forum, Stefan Tromel, will then address the committee on why this treaty is a test for Europe's standing in the world and also a test for Ireland within Europe. I also lay before the committee a statement from the US national council on disability. Unfortunately, I have only two copies, one of which the Chair has, but I will refer to it later.
The drafting process on this treaty is already under way. Ireland was, to its credit, at the forefront of these developments until overtaken by Mexico in November 2001. Mexico deserves full praise for its commitment and persistence. The first session of the ad hoc group of states to “consider proposals for drafting a treaty” met last summer in New York. Despite many procedural advances, it failed to resolve the most crucial issue - whether to stop considering proposals to draft a treaty and to start the actual drafting process.
The 15 EU states adopt a common position on matters such as this within the UN system. For a variety of reasons, the position of the EU is crucial. The US, the world's natural leader on many of the issues involved, is unlikely to take the lead role for political reasons, yet it would probably support the EU if it took the lead. Ireland's recently reported opposition to the treaty within the powerful EU bloc could well hasten the collapse of the entire process. That is one reason this hearing is so important. In an important communication of policy statement the European Commission recently strongly favoured the drafting of such a treaty, but the last word rests with the member states.
There can be no denying that the human rights of persons with disabilities throughout the world is dire. About 500 million of the estimated 600 million people with disabilities live in developing countries. One could say that the rights problems of persons with disabilities are similar to those of all persons in developing countries. Up to a point this is true, yet many of these problems are accentuated for the simple reason that maltreatment and near total exclusion of persons with disabilities from the mainstream is still considered "normal" in many countries.
Human rights problems span all rights including liberty, due process, the right to life, freedom from torture, education and so forth. It would seem that many economic, social and cultural rights are used to fund the isolation of persons with disabilities. Human rights violations can themselves give rise to disability, for example, inadequate food and nutrition as well as violations of the laws of war.
Ordinarily one could rely on the political process to address the relevant issues. Yet people with disabilities tend to lack voice in the political process that is truly commensurate with their numbers. This is well attested. Many people with disabilities even lack an effective right to vote throughout the developing world. It is small wonder therefore that change comes slowly. The US Congress specifically alluded to this structural political weakness in terms of the Americans with Disabilities Act - ADA. Furthermore, the champions of disability rights are fragmented and weak. Especially in the developing world, the disability NGO sector is relatively unskilled at using the parliamentary process to effectuate structural change, much less at using the legal process to challenge abuses.
There have been many welcome normative developments in UN treaty law. In our recent study commissioned by the Office of the UN High Commissioner for Human Rights we noted several positive normative developments, yet these developments are unlikely to yield concrete multiplier effects. Why? The main supply side problem is that the relevant treaty monitoring bodies are unlikely to be able to focus consistently on the issue due to the pressure of their work. Even if they could afford the luxury, they lack any membership with expertise in the field.
The main demand side problem is that the disability NGOs are not tooled up to use the existing machinery to its optimum. How could they be? They are highly impoverished and have to split their focus among six different treaties. It is much better to focus on immediate priorities like securing better services locally for their members. This micro-rationality is ultimately self-defeating since the key to acquiring these services is a general acceptance of the rights of persons with disabilities. No one could blame NGOs for their local focus. Despite some recent signs of progress, even the more general human rights NGOs take very little interest.
During the 1980s a world programme of action, WPA, for people with disabilities was put in place by the UN General Assembly. Just one part of it dealt with equal opportunities for people with disabilities. Nothing much happened. An expert panel convened by the UN decided in 1987 that a new treaty was needed. Both Italy and Sweden proposed drafts.
This proposal was rejected not on the merits, but because of "treaty fatigue" in the system at that time. A compromise was reached in 1993 where the UN General Assembly passed a landmark resolution entitled the UN Standard Rules of the Equalisation of Opportunities for Persons with Disabilities - SRE. An office of special rapporteur was set up under the SRE to report on and monitor developments. Until recently this post was held by a distinguished former Swedish Government Minister, Bengt Lindqvist. Ten years on, not much has happened despite the Herculean efforts of Mr. Lindqvist. The UN special rapporteur has himself concluded that a thematic treaty is necessary. Indeed, he was the main author of the Swedish draft text in the 1980s.
What will a treaty do to address all of the above? This is a fair question. The proposed treaty on disability would be the fourth so-called thematic treaty to focus on the interface between general human rights standards and their application in the context of a specific group. The existing thematic treaties cover women, children and racial minorities. As is the case with all these treaties, the main purpose is not to add new law but to clarify and sharpen the focus of existing law in the context of a forgotten or vulnerable group. This is to the benefit of states as well as civil society. There are many benefits to a treaty. First, a treaty could lend validity and moral authority to the felt grievances of persons with disabilities. It is one thing to suffer abuse in isolation; it is another to link that suffering to a sense of injustice and to invoke the language of rights to bring about change. Second, the very process of drafting the treaty could ignite within the disabled community a heightened sense of their rights - rights which are held in common with all others on the planet. This is a very real prospect if the process is allowed to go forward because of the procedural innovations I mentioned earlier. NGOs from Kinshasa to Kinvara will be allowed to participate.
Third, any treaty should have a treaty monitoring body. For the first time ever, there will be space within the UN system for genuine human rights expertise to grow in the field of disability. As this expertise grows in authority and credibility, the other and more mainstream human rights monitoring bodies can be expected to pay much more attention to the issue. This happened to women's issues after the adoption of CEDAW. Fourth, if the treaty was to contain an individual or group complaints mechanism, then one could expect the relevant case law or jurisprudence to sharpen over the years to the benefit of states as well as civil society. Fifth, it is important to remember that international human rights law is not an end in itself; it is useful inasmuch as it contributes to domestic developments. A treaty such as the proposed disability treaty would galvanise civil society. It would provide language and a focal point for pressure groups to congregate. In the language of sociologists, it would provide a focal point around which fragmented interest groups could aggregate their interests and then effectively articulate them in the political process.
In my opinion, the proposed treaty would help to anchor in place a positive dynamic of change within developing countries. Ideally, it should lead to a proofing of development aid to make sure that it does not compound the exclusion of the disabled. It should lead to an increased focus on the need to enhance the capacity of disability groups to participate in the political process through programmes of democratisation which are sponsored by many countries. All of these are necessary to bring about change. However, without the gravitational force of a treaty, such change is less likely to occur.
With respect to developed countries, such a treaty could powerfully reinforce positive trends already under way. We in Ireland need not fear this - indeed there is much we have to showcase through it. What matters for both sets of countries alike is that we are committed to achieving tangible progress consistent with local circumstances. Ireland's reported position within the EU 15 could easily jeopardise this process. I ask the committee to recommend to Government that it should allow a positive EU common position to be adopted not grudgingly because it has to, but willingly because the pursuit of justice for all is in our character and destiny as a small nation. I refer to the submission of the US National Council:
Disability is a global issue that cuts across every boundary, social, economic and geography. The credibility of this treaty process depends on all nations gathering the political will to push ahead together, especially those such as the United States and Ireland who have succeeded in guaranteeing rights for their citizens. The progress and momentum achieved at this point are encouraging but far from safe. Ireland has an important role to play in ensuring that people with disabilities will not again be cast aside by the human rights system but instead will be permanently integrated into its legal framework. A unified EU will send the message to the world more loudly and more clearly than perhaps any other voice.
When Ireland declared its independence it did so on a promise to cherish all the children of the nation equally. We should never forget that we are the descendants of those who fought for justice and freedom for all. Now the eyes of Europe and the world are upon us. We can turn our back on them or we can re-dedicate ourselves to the process and, through it, to the developing world.