Lupus is an uncommon condition, with 90% of cases occurring in women. The condition causes many different health problems ranging from mild to life-threatening. As there is no register of patients with lupus, it is not possible to provide a figure for the total number of annually diagnosed cases.
Patients with lupus are generally under the care of a rheumatologist and may also be seen by other specialists such as dermatologists. Any person may be referred to their local hospital by their GP. There is no estimate available of the average cost of treatment.
There are no plans at present for a national campaign to provide information regarding lupus. The HSE would be happy to make arrangements to meet the Lupus Patient Group. The HSE National Advocacy Unit will facilitate such a meeting and can be contacted at www.yourserviceyoursay.ie or 045 880400.
There are no plans to extend the list of conditions covered by the Long Term Illness Scheme. Under the Drug Payment Scheme, no individual or family pays more than €132 per calendar month towards the cost of approved prescribed medicines. The scheme significantly reduces the cost burden for families and individuals incurring ongoing expenditure on medicines.
In addition, people who cannot, without undue hardship, arrange for the provision of medical services for themselves and their dependants may be entitled to a medical card. In the assessment process, the Health Service Executive can take into account medical costs incurred by an individual or a family. Those who are not eligible for a medical card may still be able to avail of a GP visit card, which covers the cost of general practice consultation.