Dáil Éireann Debate, Wednesday - 15 June 2022
197. Deputy Colm Burke asked the Minister for Health the work that his Department and the HSE are undertaking in order that 35 children with cystic fibrosis whose age and genotype were not included in the initial deal with the drug manufacturer will now be included to provide access to the life changing medication kaftrio; and if he will make a statement on the matter. [31066/22]
View answer211. Deputy Steven Matthews asked the Minister for Health if his attention has been drawn to the campaign by the families of 35 children with cystic fibrosis seeking access to a medication called kaftrio that had been promised to these families by their medical teams previously; and if he will make a statement on the matter. [31093/22]
View answer216. Deputy Duncan Smith asked the Minister for Health the reason there are 35 children in Ireland that have cystic fibrosis are excluded from the pipeline deal for the drug kaftrio; and if he will make a statement on the matter. [31155/22]
View answerI propose to take Questions Nos. 197, 211 and 216 together.
Under the Health (Pricing and Supply of Medical Goods) Act 2013, the HSE has statutory responsibility for the administration of the community drug schemes; therefore, the matter has been referred to the HSE for attention and direct reply to the Deputy.
