I am Theresa Graham from Tramore in County Waterford and I am an MRSA widow. We have not come here seeking sympathy for ourselves or the people we represent throughout the country. We have come to demand justice and action. It is easy to talk the talk and we have heard enough of that; now we need those who have the power in the community to walk the walk and do something about this matter, which has already got out of control.
In the coming weeks, representatives of the HSE and the Department of Health and Children and perhaps the Tánaiste herself will come before the joint committee. They will state that they are disappointed about the recent disgraceful hygiene audit. I can afford to be disappointed because I am not being paid a large amount of money to be in charge of the sector. Those people cannot afford to be disappointed because it is their responsibility. They must be ashamed and accountable and they must take action on the matter immediately.
One of the more maddening reactions to the problem is a shrugging of shoulders and statements to the effect that the infection is affecting all countries. This is not true because it is no longer in western Australia and has almost disappeared in the Netherlands, Finland, Denmark and Iceland. This is a result of those countries taking the infection seriously, with the people in power deciding to do something about the problem. We are seeking similar action.
These people from the HSE and the Department will also tell the joint committee that they have answered all the questions of other witnesses who have come before the committee on the issue. They will argue that they have produced this and that report and that the problem has been solved. The joint committee will be assured that these reports will satisfy any demands that we, and other people like us, are making. We have been here before. I have do doubt that these people are sincere in their intentions and I have spoken to them as a representative of a patients' forum in the regional hospital in Waterford. I realise that they do not like the current situation any more than we do. However, I share Mr. Kavanagh's pessimism and, based on what I have read in these reports, not much will be done about the issue.
The former Minister of Health, Deputy Noonan, is record as stating:
National guidelines on the care of patients and staff identified as carrying MRSA have been drawn up by a panel of experts including representatives from those concerned with the areas of infection control both in hospital and community. These will be widely circulated throughout the country and will give invaluable advice on prevention of spread of MRSA in a variety of health care settings. It is hoped that these guidelines, when implemented, will reduce the presence of MRSA and will ensure an even safer environment for the care of the sick.
This statement was made in 1995, a full ten years ago. In that year, 55 cases of MRSA blood infections were reported and a set of expert-produced guidelines was published, after two years deliberation. This closely resembles the latest set of guidelines. If the 1995 guidelines had been implemented, as the Minister of the day had hoped, MRSA and Families would have no need to exist.
More importantly, much of the physical and psychological suffering of people in the intervening ten years would have been prevented. This is a tragedy and a cause for the justifiable anger that our group feels. The suffering and trouble we experienced only merited one sentence in the most recent expert report. Can our group be blamed for its anger?
As already stated, there were also financial costs involved in terms of the provision of additional staff and the extra time patients were obliged to spend in hospital. I spoke to one young woman who was expected to spend eight days in hospital but who actually spent 18 months there before her parents gave up and took her home. There is also the factor of the expensive drugs required to fight the infection. Representatives of the HSE and the Minister for Health and Children will not quantify this cost because they do not know it. A study in UCC estimates that the treatment of MRSA costs approximately €150 million per annum.
We have seen that the problem was known and that solutions were proposed ten years ago. It has been allowed to fester. I use the word "fester" advisedly and any member who has witnessed an MRSA blood infection will know that it offers an appropriate description. What assurances are now in place to enable change in light of the new information? We do not know how much these reports cost to produce but there is no evidence that anything will change. The new HSE is engaging in window-dressing and there is one person in charge who has stated that he will take responsibility. We have seen no evidence of a change in ethos or hospital practice. In light of these reports, this is where we should be looking for change.
The day before yesterday, a woman whose husband has suffered from MRSA for three years contacted me. The man is in and out of hospital because he also has other conditions. The woman tells the hospital authorities every time he is admitted that he has MRSA but on each occasion he is placed in a ward with people who do not have the infection. He is tested, which proves to the hospital authorities after three days that he has MRSA, and he is then placed in isolation. The woman complained on the most recent occasion that this happened because she has heard this group's opinion on the matter and she was told that her husband would be placed next to a sink. I was not aware that sinks had any magical properties, although they can be effective for hygiene control if used properly. This matter beggars belief and would be funny if it were not tragic. The strategy for the control of antimicrobial resistance in Ireland, SARI, document is attractive, with nice colours but I draw the attention of members to the following paragraph, which is highlighted in the event that people who receive the report do not get the point:
It is acknowledged that in many healthcare settings in Ireland, it will not be possible to implement much of what follows despite the best efforts of healthcare professionals, because of inadequate resources, sub-optimal infrastructure and a lack of access to relevant expertise locally. Nonetheless, these are guidelines that all healthcare facilities should aspire to implement. Where it is not possible to implement some or part of the recommendations, the reasons for this should be highlighted to senior management. In this way, it is hoped that these guidelines, in tandem with other measures, will heighten the profile of infection control and prevention, and also facilitate the provision of the appropriate resources.
The paragraph contains phrases such as "it is hoped" and "healthcare facilities should aspire". If my self-development students submitted an assignments containing such language I would hand them back and ask them to change these phrases to "I am doing". How high do these people wish the profile of infection control to be? What are we doing? I make no apology for sounding angry. I am angry on behalf of people who are suffering needlessly.
The national hygiene audit report recommended setting up two more bodies, a national working group and a working group in each of the hospitals. I worked in local government for a time and I know as well as members how long it takes to set up working bodies, receive recommendations from them and put these into practice.
I am a member of a patient forum at Waterford Regional Hospital, which I was asked to join in order to keep me quiet, a strategy that did not work. When we first met last February, we identified 13 items that needed to be rectified in the hospital. I highlighted hygiene standards, which I described to the Tánaiste and Minister for Health and Children, Deputy Harney, this time last year as horrendous. Much needs to be done on this matter. We also highlighted two simple items which one would expect to be implemented within weeks. The signs in the foyer of the hospital were not clear and people did not know where to go on arrival. Extra parking for disabled people was needed outside the main entrance and the accident and emergency unit. At the next meeting we were told that a committee of the users of the foyer had been set up. This occurred in February and the committee has still not reported. At the most recent meeting the general manager approved of the idea of extra parking and she proposed it to the medical consultants, who agreed that it had merit. The finance committee of the hospital will have to include this in the budget for next year and then the parking facilities might be supplied. This is what is recommended in the national hygiene audit. If we were producing cars or furniture, we could afford to wait for this. In dealing with people who are being infected, suffering and dying, however, we cannot afford to wait.
I have provided members with a sample of a leaflet produced by MRSA and Families. I presented this to the Waterford Regional Hospital and the HSE in Kilkenny and suggested that copies be provided to every patient and his or her relatives on admittance to hospital. Their response was positive but they stated that they would await the recommendations of the report. They will not implement the proposal but we will. As Dr. Fawsitt stated, we need the guidelines to be statutory and for sanctions to be available.
The Minister for Agriculture and Food implemented two statutory instruments to force poultry owners to register. We recognise that the agriculture industry is more important than the pain and suffering endured by patients but if a Minister for Agriculture and Food can introduce a statutory instrument, surely the Minister for Health and Children can do likewise. We need guidelines to be enforced and sanctions to be applied. Those who express their disappointment at the results of the audit benefitted from benchmarking. Did they deserve it and will they deserve it next year?
In response to Deputy McManus's question, people from places such as Donegal, Galway, Limerick, Sligo, Kerry and Cork have indicated to us that they are not being informed. Some are being told lies, such as a woman who was informed that her husband did not have MRSA because the bacterium was not present in the hospital. He died two weeks later and MRSA is listed as the cause of death on the death certificate. We are being misled, lied to and fobbed off. This practice is universal and I second the points made by Dr. Fawsitt.
Those who have suffered from MRSA and their families need counselling. A panel of counsellors exists for those affected by hepatitis C and those who suffered from MRSA should be entitled to this service. We do not want any more reports, inquiries, or consultants. We want action now.