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Dáil Éireann díospóireacht -
Wednesday, 29 Jun 1994

Vol. 444 No. 6

Adjournment Debate. - Irish Centre for Independent Living.

I thank the Ceann Comhairle for affording me the opportunity to raise this very important matter on the Adjournment. I should also like to compliment the people from INCARE who made their way to Leinster House and who have been at the gates of our national Parliament all day. I should also like to compliment the staff of Leinster House who assisted in making space available for them in the Public Gallery.

Perhaps the best way to describe the need involved is simply to say that £150,000 is required to run the services provided by INCARE for people with disabilities to the end of the year. In order to describe the services that have been made available it is best for me to quote the following from the hand-out prepared by the organisation:

The first Irish Center for Independent Living (CIL) has become a powerful voice in the community. CIL addresses the issues of independent living, self-determination and options in everything from personal assistance to housing, access to public transportation, education and employment. The guiding philosophy can be summed up in the words "Nothing about us without us".

The Minister who met the group this evening, and those of us who met them during the day, cannot but have been impressed by the degree of enthusiasm, determination and commitment on the part of the Center for Independent Living, those who give the personal assistance, those who provide the care and those who facilitate the disabled in achieving the ultimate in their own development, their goals, in the achievement of equality of living standards and access to employment and educational opportunities to ensure they can be treated equally, which is in accordance with Government policy. I am sure the Minister for Equality and Law Reform likewise would laud their efforts in this area. Essentially, the personal assistants ensure that those who would otherwise be confined to their homes and could not gain access to work or education are enabled to do so by virtue of the availability of the assistants who have done a wonderful job. The pilot programme, set up in 1992 with assistance from the EU Horizon programme, expires this year.

It is essential that the Minister takes on board the work being done by INCARE by giving those who are disabled or physically handicapped, who would otherwise be unable to achieve the ultimate in fulfilment, a new lease of life. It has enabled them to become involved in the economy and in contributing to the gross national product, thereby ensuring that they have helped themselves. The adage is that self help is one's best preparation.

There are people in the public gallery who have clearly illustrated that they are prepared to help themselves. All they require from society is a helping hand. They set up the INCARE programme and proved by their training programme for assistants that it can work. They have also shown they can achieve results.

I ask the Minister to use his good offices to ensure that nothing impedes the development of the INCARE programme. It would be a tragedy if at a time when there is a general awareness — the Minister has shown this since he has became Minister and indeed when he was on the Opposition benches — he was not prepared to continue to give the support to those people at a vital time. While I acknowledge the assistance from FÁS and the Departments of Social Welfare and Health, all have culminated in meeting a need and allowing the people concerned to take their honourable place in society. I ask the Minister to provide the necessary funds to allow them to continue to do so.

I join Deputy Durkan in complimenting the Center for Independent Living and its group, particularly on the persuasive lobbying today and for being here at this early hour of the morning. For me it was a worthwhile interaction and underscores the fact that we learn from speaking to each other.

I am aware of the funding difficulties at the Center for Independent Living. The centre runs two programmes: INCARE, which is a two-year action-research programme based on promoting independent living for people with disabilities through the use of personal assistants and Operation Get Out which is a one year action-research programme aimed at giving people with significant disabilities in institutional care the opportunity to live in the community with proper back-up support.

Funding of £235,000 for these programmes was received under the EU Horizon Programme as a two-year pilot project. In addition, a further £100,000 was provided by the Minister for Social Welfare in 1993 to support the INCARE Programme and £38,000 was provided by the Eastern Health Board in June 1994 to support the Operation Get Out programme. Funding is also received from FÁS on an ongoing basis for the training of personal assistants.

When officials met representatives of the centre this morning, they were advised that expenditure projections to the end of 1994 indicate a shortfall in funding of £120,000. This, it appears, arises from the fact that the centre took on commitments which it was not in a position to finance. I am concerned at the implications of this financial crisis for the 30 people with disabilities in receipt of services from personal assistants under the centre's programmes. There are also serious implications for the 55 employees. I stress that I fully support the principle of independent living for people with disabilities.

Following urgent telephone calls this week, I arranged a meeting between an officer of my Department, the Eastern Health Board and the centre. On foot of this meeting, further detailed financial information is being requested, particularly in relation to the management and administration expenses incurred by the centre. In view of the considerable funding already approved by the Minister for Social Welfare, I am consulting him to see if a solution can be found to the current problem. In the meantime, I am pleased to state that Rehab Lotteries will be providing a once-off grant of £30,000 and this will ensure that services can be maintained in the immediate future. I hope in the short term to finalise a financial package.

As I mentioned at the outset this is a two-year pilot project largely funded by Horizon under EU guidelines and will be the subject of review and evaluation, including an investment-benefit analysis.

The Dáil adjourned at 12.50 a.m. on Thursday, 30 June 1994 until 10.30 a.m.

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