Dáil Éireann Debate, Tuesday - 22 November 2016
477. Deputy Catherine Murphy asked the Minister for Health if the HSE maintains or supports a national patient registry of adult neuromuscular diseases, acquired and inherited, that captures epidemiological data in a standardised form and profiles a true picture of the burden of neuromuscular diseases in a population; and if he will make a statement on the matter. [36286/16]
Amharc ar fhreagraThe Department does not have a policy of creating databases or registers in respect of individual conditions.
With regard to services for people with disabilities, the Health Service Executive's two current Service Planning Databases in the disability sector are the National Intellectual Disability Database and the National Physical and Sensory Disability Database. The Health Research Board manages both of these databases on behalf of the Department of Health. The databases record current and future service needs, rather than being a registry of those with specific conditions. Health funded services for people with disabilities are provided on the basis of identified service needs, rather than linked to a specific diagnosis.
