Dáil Éireann Debate, Wednesday - 2 March 2022
214. Deputy Ruairí Ó Murchú asked the Minister for Health the expected timeframe for the establishment of eHealth virtual disease-specific registries; and if he will make a statement on the matter. [12013/22]
Amharc ar fhreagraThe Department is currently preparing a Memo for Government for approval-in-principal of a Health Information Bill, to improve the care people receive, their outcomes and the well-being of the population by ensuring high quality information is available to the public, health and social care professional, researchers and policymakers.
Included in the design of this Bill is a provision to enable the operation of disease-specific “virtual registries”, where information on disease diagnoses and treatment from healthcare providers are efficiently collated, combined and quality-checked from administrative records to create a database akin to an active registry for each disease. This will greatly improve the potential to monitor rare-disease prevalence in Ireland
